Why did we write this book?
We asked some of our writers why they decided contributing to this book was worth it to them.
I contributed to this book because, for me, ME/CFS arrived almost overnight and took nearly everything, my career, my plans, my ability to cook or even wash and it also changed my partner’s life irrevocably, too. This is a physical illness that nobody would ever choose, and people need to understand that.
- Lisa D.
I have had ME for 24 years and the thing I have struggled with most is not the disease itself but the uncontrollable anxious anger that arises from the medical trauma I have faced. I would love to say that things are changing but on the ground they really haven’t. Yet. But I believe it is coming. I hope if you are reading this, you’ll be part of making that change happen.
- Jo
I want to share some of my story with the world in the hopes that others will begin to better understand life with ME. I want to participate in helping myself and others with ME spread awareness about this debilitating illness.
- Jenny
Our writers have shared their extremely personal experiences of living with ME or caring for someone with ME in order to further medical understanding and give a voice to the millions missing due to ME. The book ‘What is Myalgic Encephalomyelitis Like?’ is now available on Amazon. All proceeds go towards expanding ME care with ME Action. Follow this page or @wimelwriters on instagram for more information.
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