Our Goal
We asked some of our writers what they hope people gain from our new book ๐๐ฉ๐ข๐ต ๐ช๐ด ๐๐บ๐ข๐ญ๐จ๐ช๐ค ๐๐ฏ๐ค๐ฆ๐ฑ๐ฉ๐ข๐ญ๐ฐ๐ฎ๐บ๐ฆ๐ญ๐ช๐ต๐ช๐ด ๐๐ช๐ฌ๐ฆ?
I hope this book helps healthcare professionals, students, and policy-makers truly understand that living with ME/CFS means carrying an invisible weight; the constant calculations, the concessions in every area of life, and its carried by both patients and their carers. Every interaction with one of us comes at a cost, and that understanding should shape how care is delivered, how curricula are built, and how policy is written.
- Lisa D.
ME runs in family and we currently have four women over two generations with it. I think of all the past and future generations of women in my family alone, then I think about all the other women in families, and it makes me determined that we should be #thelastgeneration to face the disbelief and lack of care that comes with having ME.
- Jo
ย I hope that this collection will go some way to helping medical professionals, students and policymakers consider any improvements to the healthcare system and provisions that might make it easier for ME patients to access and benefit from much needed care.
- Michelle
You may have heard of Myalgic Encephalomyelitis but itโs likely that you didnโt learn much, if anything, about it in medical school. This book is an absolute must-read to grasp the breadth of suffering the condition entails. Please then lend your voice to the demands for urgent research so that future generations are not consigned to a living death.
- Mary M.
Our writers have shared their extremely personal experiences of living with ME or caring for someone with ME in order to further medical understanding and give a voice to the millions missing due to ME. The book โWhat is Myalgic Encephalomyelitis Like?โ is now available on Amazon. All proceeds go towards expanding ME care with ME Action.
